I might as well ask how many stars span the skies. This side
of heaven, however, I will not have answers to my questions. Even Google cannot
supply these answers.
For example, once an elderly person begins to slump in his
wheelchair, can that be corrected? What causes slumping? Weak bones? Loss of
balance? Depression? And if the person has dementia, is it even possible to
know the cause?
To all my creatively phrased attempts to find out, Google responds
with wheelchair vendors. Google also gave me www.dementiaguide.com, whose symptom
library proved interesting but did not address slumping.
Another question I posed to Google was how to handle an
Alzheimer’s patient’s teeth loosening. What are the contributing factors? How
can we prevent further tooth loss? What’s the best thing to do with two already
wobbly teeth? Google gives me only sites that propose a reverse order of
things: Loosening teeth might predict Alzheimer’s.
My overarching, most emotional, question—I’m not sure how to
phrase for Google. I feel helpless and twice removed from my father’s medical decision
makers. The doctors talk with the nursing home staff, who in turn, communicate
with the family. But when I ask why a
doctor made a decision, the staff doesn’t know. They may offer to find out, but
never call me back. And only when I ask why an oxygen machine is in Dad’s room
do I find out he had a syncope incident over the weekend. Only when I happen to
show up the day after my father spiked a fever does a nurse tell me about it. I
can’t blame her for forgetting; she’s got several dozen people’s medical
incidents on her mind. And nurses are pretty good about calling my mom and me
about bigger things.
Still … I often feel helpless and somewhat cowed by
institutional barriers. It’s easy to accompany my noninstitutionalized mother
to her doctor appointments; direct access is the norm. Once my father entered
the nursing home, family doctors were out; nursing home doctors were in. But I
think the time has come to contact my father’s nursing home’s doctor and
dentist directly. I would just feel better if I had a few more answers.
Your dad is blessed that you are there to notice the slump, the loose teeth, the oxygen tank. That doesn't help when it comes to searching for answers that will help you figure out how to best to make your dad comfortable, I know. But I'm glad you are there to ask the questions, and notice, and love him well during these days.
ReplyDeleteThanks for the encouragement, Michelle.
ReplyDelete