“Antidote
to Invisibility” [first posted May 8, 2012 in www.aquajane-musings.blogspot.com]
Moved
by grief over his mother’s decline into Alzheimer’s and Parkinson’s diseases
and sorrow over society’s tendency to make patients’ diagnoses their new
identities, Dwayne Clark set out to keep his mother Colleen’s lifetime
achievements and identity alive. The result is a memoir-tribute, My Mother, My Son. With remarkable
candor, Clark chooses stories to aptly illustrate his mother’s feisty
personality, character, and values, and her contributions to his development.
Woven throughout these stories is their fierce mutual devotion.
Each
story (chapter) is dated. Chapters from the 1920s, 1930s, and 1940s recall
Colleen’s early influences. Anecdotes from 1960s and 1970s illustrate Dwayne’s
family upbringing. From about 1999 through 2010, stories chronicle Colleen’s
decline and the family’s decisions regarding her care. Chapters do not proceed
chronologically; rather, they bounce from present to past, usually for a
logical purpose. Generally, zigzagging flashbacks disorient me, and a few times
while reading this book, I had that feeling. Most of the time, however, I could
see why certain stories were placed where they were. For example, when Dwayne
senses Colleen’s disorientation and loneliness upon finding herself in a
nursing facility, he wonders if perhaps she now feels how she had felt as a
young war bride making a long journey from her childhood home in India to her
new home in Washington state, so he tells the sea-voyage story at that point.
I
wanted to read this book because of the holding on–letting go tug of war in my
own heart over my father’s decline into Alzheimer’s. Dwayne Clark articulately
wrote out emotions I’d only been able to weep out. Here is one example: “It was
as if I had come down with a spiritual and emotional flu, letting all the
anger, fear, worry, and loss fully infect my soul.” Reading this book gave me a
sense that I’m not alone. Not only did his struggle touch my heart, but it also
was lively, interesting reading. Although I could relate to his not wanting to
lose his mom in this tragic way, I could not relate to much of his family
background. Still, his stories were fun to read. And I really, really wanted to
get to know his mom. I’m not even sure I would have liked his mom, had I known
her in real life. But I loved her fierce devotion to him, her support of him,
her encouragement of him. And as the book points out, her consistent,
confidence-building words came full-circle when he grew up to design the very
memory-care communities that would embrace his own mother. One of the most
encouraging messages of this book, for me anyway, was that our parents live on
in us. I don’t want to lose my parents; they carry their own torches more
brilliantly than I’ll be able to. Still, I am who I am because of who they are.
Despite the heart-breaking subject, this book maintains a positive outlook.
As
memoir, My Mother, My Son is
universally engaging, especially to those of us in the midst of elder care, but
also to a society tempted to diminish the impact of the elderly and infirm.
Colleen Clark was not her diseases. Like all dear people afflicted by
Alzheimer’s disease, she was a vibrant person who led a full life making a
difference in others’ lives. She may forget her stories, but the people she
influenced dare not reduce them to invisibility. In this moving tribute, My Mother, My Son, Dwayne Clark succeeds
in providing an “antidote to invisibility.”
Because
Dwayne Clark is in the business of providing residential care to mature adults,
after he finishes his story, he offers practical advice, guidelines, and
resources for those on the elder-care journey. I found this section helpful as
well.
I
received a copy of this book from the book’s publicist. To buy this book on
Amazon.com, click this link:
http://www.amazon.com/My-Mother-Son-determination-memories-lost/dp/098481521X/ref=sr_1_1?ie=UTF8&qid=1336506953&sr=8-1
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